The project, ‘Hepatitis C-related stigma and discrimination in a post-cure world’, was a national three-year study on people’s experiences following hepatitis C treatment, and the laws, policies and practices that shape stigma and discrimination after cure.

In 2016, direct-acting antivirals (DAAs) were introduced as a simple cure for hepatitis C, with a success rate of over 95 percent. The Australian government has invested heavily in DAAs and has set the goal of virtually eliminating hepatitis C in the country by 2030. Despite these efforts, however, many questions remain regarding the stigma and discrimination that individuals face during treatment and after being cured.

The Hepatitis C-related stigma and discrimination in a post-cure world project explored the laws, policies, and practices that impact individuals with hepatitis C in Australia. The ultimate goal was to identify opportunities for reform that may lessen experiences of stigma and discrimination.

The project also explored the lived experiences of individuals who have undergone treatment and those who have been cured. This included examining the ongoing impact of hepatitis C-related stigma and discrimination, as well as the forces that shape these experiences. Through this work, the project team hope to promote better legal, social and policy outcomes for all Australians affected by hepatitis C.

The project has resulted in the release of a summary project report, including an overview of findings, as well as a list of recommendations for reforms to law, policy and practice in Australia.

In addition to the report is a professionally produced podcast sharing the stories of three people from different parts of Australia, and their experiences of living with hepatitis C, getting treated with direct-acting antivirals, and life after cure.

Project outputs: